Tomorrow, Brenna is scheduled for her second eye surgery…and her first true surgical procedure since she was 8 months old and had her g-tube placed in her stomach. (Not counting her deep ear cleanings every 6 months that do require anesthesia).
We are reassured that it is routine, and we are more than agreeable that this is a necessary procedure, but that still doesn’t make it easy to think about someone operating on your child’s eyes.
Brenna’s first eye surgery was a huge success, though it was more of a skin surgery than an eye surgery. Our surgeon took skin grafts from behind Brenna’s ears to create a longer eyelid for her. Medical advancements are just astounding to me sometimes. He literally made her an eyelid, where her lids had been pulled so tightly in utero that they were shortened and flipped inside out, looking so irritated and painful. This allowed her to be able to blink correctly and to close her eyes completely.
10 days after eye surgery in 2012… still healing.
The surgery tomorrow, however, will be on her actual eyes.
We began noticing as Brenna grew older than her eyes were beginning to cross. Earlier this year, she got glasses, because she was shown to be far-sighted… but I tell you, keeping glasses clean and on a 2-year-old who is covered in Aquaphor is impossible. Her frames would get smudged within 2 seconds of wearing the glasses, or her warm skin would cause them to fog up, and then, lo and behold, she couldn’t see. So we were in the same boat as we were with the glasses off. It quickly became a losing battle.
Seeing through smudged glasses is a little difficult, no?
The crossing of the eyes, also called strabismus, seems to be very common with ichthyosis. And, if left uncorrected, what happens is that the brain starts to favor one eye and not use the other eye. Not a good situation.
And therefore, surgery.
We are nervous and hopeful and just praying for a very successful procedure with minimal pain for our girl and the best possible outcome with her eyes – aligned eyes, strong muscles, and better vision…