If there has been anyone who has given our family hope for Brenna living a “normal” life into adulthood just purely by her actions, it is a young woman named Stephanie.
When Stephanie was born almost 20 years ago, her mom was just 19 years old and was told that her daughter would not survive. She was told about Harlequin Ichthyosis, that it was fatal, and a counselor came to her hospital room to prepare her for Stephanie’s death.
Day after day, she was told “she’s still alive, but don’t expect her to be much longer,” and eventually, her mother said, “why not expect her to live longer? She wasn’t expected to live 5 minutes, and it’s been days now!”
After a one-month hospital stay, Stephanie was released and sent home with her mother. On Tuesday, Stephanie will turn 20 years old!
Thank God that I got my stubbornness, strong will and fighting side from my momma! She always has been and always will be my hero. When everyone else doubted me, she KNEW I’d make it. Giving up isn’t an option for us… She knew God had bigger plans – he doesn’t give you anything you can’t handle. I believe that with everything I have.
I wasn’t supposed to make it 5 minutes, I’m celebrating my 20th birthday Tuesday and will be welcoming my baby boy into the world any day now. Tell me I can’t do something!