Special thanks to GoRVing.com for sponsoring this post and allowing us this experience. All opinions are my own. For a long time, outside felt really scary. When we first learned about Brenna’s diagnosis of Harlequin ichthyosis, with complications like heat intolerance and high infection risk, everything outside seemed unknown, very potentially dangerous. I was terrified of even moving her from a covered NICU isolette to an open crib, let alone bringing her home. Any environment we … [Read more...] about Why RV Travel is a Great Option for Families with Special Considerations
15 Must Read-Alouds for the Classroom: the Best Books for Teachers about Differences and Being Yourself
The beauty of reading to our children is that it can transport us to faraway places, time periods in the past or the future, even worlds only alive in our imaginations. But – as our family has seen from raising a child with special needs – reading also does something else: it allows us to learn about each other. It enables us to imagine how we might feel in situations we have never been in or to appreciate someone’s life we have never met. Reading provides us with the framework for developing … [Read more...] about 15 Must Read-Alouds for the Classroom: the Best Books for Teachers about Differences and Being Yourself
What To Do with Kids in the Smoky Mountains
When we found out we would be in Tennessee for a family conference, we were excited to experience the Nashville area with both kids - but we also took advantage of the location and spent three days in the Smoky Mountains first! Ever since getting a taste of Yellowstone four years ago, I've been slightly obsessive about experiencing the wondrous beauty of our country's national parks. Great Smoky Mountains National Park was so pretty, easy to get to, accessible and affordable - perfect for a … [Read more...] about What To Do with Kids in the Smoky Mountains
My Favorite Cleaning Product for Moms
This post is sponsored by Federal Process and contains affiliate links. As always, all opinions are my own. I think there's a misconception that as we have adjusted to life with ichthyosis over the last six years, we are always on the hunt. New skin care routines, new cleaning products, new summer essentials, new types of clothing... endless options are out there when you really start looking. The reason we aren't always changing things up is that it can be exhausting to constantly … [Read more...] about My Favorite Cleaning Product for Moms
Tuned In Together: Why Our Foundation’s Family Conference Is So Important to Us
June ended in a big way for our family - attending our third national family conference hosted by the Foundation for Ichthyosis and Related Skin Types in Nashville! We were thrilled to reconnect with other families around the world affected by this rare genetic skin condition whom we've gotten to know both online and in person over the last six years. There is nothing like being able to hug someone who has walked with you during some of most critical points of your child's life. What I … [Read more...] about Tuned In Together: Why Our Foundation’s Family Conference Is So Important to Us